About the network

The EuroCJD network was established in 1993 to conduct epidemiological surveillance for Creutzfeldt Jakob disease. Twenty-eight centres from EU Member States and EFTA countries, and 9 non-EU countries, now collaborate on a regular basis. The National CJD Research & Surveillance Unit (NCJDRSU) in Edinburgh, UK is the Hub for the surveillance and research activities of the EuroCJD Network, offering clinical and laboratory advice and support on CJD and other prion diseases with funding from the European Centre for Disease Prevention and Control (ECDC).

Contact us: cjd.contact@ed.ac.uk

 

Coordination Committee: Current Members

Jean-Philippe BRANDEL jean-philippe.brandel@psl.aphp.fr

Consultant Neurologist, Cellule Nationale de référence des maladies de Creutzfeldt-Jakob Groupe Hospitalier Pitié-Salpêtrière, Paris, France

Herbert BUDKA herbert.budka@meduniwien.ac.at

Consultant Neuropathologist, Professor and Institute Director, ret., Medical University Vienna, Austria

Pawel P. LIBERSKI ppliber@csk.am.lodz.pl

Consultant Neuropathologist, Uniwersytet Medyczny w Lodzi, Poland 

Jesus de PEDRO CUESTA jpedro@isciii.es

Professor of Applied Epidemiology, Instituto de Salud Carlos III, Madrid, Spain

Maurizio POCCHIARI maurizio.pocchiari@iss.it

Consultant neurologist, Istituto Superiore di Sanità, Rome, Italy 

Inga ZERR ingazerr@med.uni-goettingen.de

Professor Neurodegenerative Disorders, Georg-August University, Göttingen, Germany

 

Former Members: 

Hans BLYSTAD hans.blystad@fhi.no

Senior medical epidemiologist, Norwegian Institute of Public Health, Oslo, Norway

Gabor G. KOVACS gabor.kovacs@meduniwien.ac.at

Consultant Neuropathologist, Medical University Vienna, Austria

Cornelia M. VAN DUIJN c.vanduijn@erasmusmc.nl

Professor of genetic epidemiology, Erasmus University Medical School, Netherlands

Robert G. WILL r.g.will@ed.ac.uk

Professor of Clinical Neurology, University of Edinburgh, UK

Country Details

Australia

Professor Steven Collins

The University of Melbourne

https://www.florey.edu.au/science-research/scientific-services-facilities/australian-national-cjd-registry

Austria

Dr Ellen Gelpi

Medical University of Vienna

https://www.meduniwien.ac.at/hp/npc/allgemeine-informationen/aufgaben/oesterreichisches-referenzzentrum-zur-erfassung-und-dokumentation-menschlicher-prionen-erkrankungen-oerpe/

Belgium

Dr Amber Litzroth

Scientific Institute of Public Health

www.wiv-isp.be/epidemio/epinl/index22.htm

 

Canada

Dr Michael Coulthart

Public Health Agency of Canada

https://www.canada.ca/en/public-health/services/surveillance/blood-safety-contribution-program/creutzfeldt-jakob-disease.html

China

Professor Dong Xiaoping

China CDC

Cyprus

Professor Savvas Papacostas

Institute of Neurology and Genetics

Czech Republic

Professor Radek Matej

Thomayer University Hospital

Denmark

Dr Anne Kathrine Hvass

Statens Serum Institute

Estonia

 

Health Protection Inspectorate

Finland

Dr Auli Verkonniemi

University of Helsinki

France

Dr Jean-Philippe Brandel

Hospitalier Pitié-Salpêtrière

www.creutzfeldt-jakob.aphp.fr

 

Germany

Professor Inga Zerr

Georg-August University, Göttingen

www.cjd-goettingen.de

 

Greece

Professor Efstratios Patsouris

University of Athens Medical School

 

Hungary

Dr Zsuzsanna Molnar

National Center for Epidemiology

 

Iceland

Professor Elias Olafsson

National University Hospital

 

Ireland

Dr Emer O’Connell

Department of Public Health

https://www.hse.ie/eng/health/az/b/bse/

Italy

Dr Anna Ladogana

Istituto Superiore di Sanita

http://old.iss.it/rncj/

 

Japan

Professor Masahito Yamada

Department of Public Health/Kanazawa University Hospital

 

Latvia

 

Department of Epidemiological Surveillance of Infectious Diseases

Lithuania

Dr Galina Zagrebneviene

Centre for Communicable diseases and AIDS

 

Malta

Dr Tanya Melillo

Infectious Disease Prevention and Control Unit

 

Mexico

Dr Victor Sanchez

Centro de Investigaciones Biomedicas de Occidente

https://www.fundacioncjd.com/

 

Netherlands

Professor M. Arfan Ikram

Erasmus University Medical School

 

Norway

Dr Solveig Jore

Norwegian Institute of Public Health

https://www.fhi.no/nettpub/smittevernveilederen/sykdommer-a-a/creutzfeldt-jakobs-sykdom---veilede/

 

Poland

Professor Pawel Liberski

Medical University of Lodz

 

Portugal

Professor Paulo Nogueira

Direção-Geral da Saúde

 

Slovakia

Dr Girma Belay

Institute of Preventive and Clinical Medicine

 

Slovenia

Dr Mara Popovic

Institute for Public Health Slovenia/University of Ljubljana

 

Spain

Professor Fernando José Garcia Lopez

National Centre of Epidemiology, Instituto de Salud Carlos III

 

Sweden

Dr Emma Löf

Swedish Institute for Infectious Disease Control

https://www.folkhalsomyndigheten.se/smittskydd-beredskap/smittsamma-sjukdomar/creutzfeldt-jakobs-sjukdom-och-andra-spongiforma-encefalopatier-/

 

Switzerland

Professor Adriano Aguzzi

University Hospital of Zurich

http://www.en.neuropathologie.usz.ch/expert-knowledge/pages/national-prion-diseases-reference-center.aspx

 

Taiwan

Dr Christine Ding-Ping Liu

Centers for Disease Control, Department of Health

 

United Kingdom

Dr Suvankar Pal

University of Edinburgh

www.cjd.ed.ac.uk

 

USA

Dr Larry Schonberger

Centers for Disease Control and Prevention, USA

www.cdc.gov/prions/